Friday, September 23, 2011

Epilepsy "invisible illness"

1. The illness I live with is: Epilepsy
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: 2006
4. The biggest adjustment I’ve had to make is: getting used to the interruptions in life
5. Most people assume: I don't know that people have assumptions about seizure disorders
6. The hardest part about mornings are: they are about the same
7. My favorite medical TV show is: Grey's Anatomy, Mystery Diagnosis, House....I'm a medical info junky
8. A gadget I couldn’t live without is: My meter. And pump. And iPod- music makes the world a better place
9. The hardest part about nights are: the fear of having a nighttime seizure
10. Each day I take 12 pills & 8 vitamins: plus insulin
11. Regarding alternative treatments I: try to educate myself as much as possible
12. If I had to choose between an invisible illness or visible I would choose: neither, but if I had to chose I like that I can open up when I choose about invisible illnesses. Except when I have a seizure in front of people.
13. Regarding working and career: It is not entirely due to the seizure disorder, but I am disabled
14. People would be surprised to know: My symptoms started with my husband finding me passed out half dressed in our closet
15. The hardest thing to accept about my new reality has been: That it is not going away
16. Something I never thought I could do with my illness that I did was: have a driver's license
17. The commercials about my illness: rare
18. Something I really miss doing since I was diagnosed is: never waking up in the hospital
19. It was really hard to have to give up: A sense of control
20. A new hobby I have taken up since my diagnosis is: relaxation- what a thought!
21. If I could have one day of feeling normal again I would: feel free
22. My illness has taught me: How to appreciate the truly important things in life and not to be so superficial.
23. Want to know a secret? One thing people say that gets under my skin is: "You've been doing too much, haven't you?" (after I have had a grand mal)
24. But I love it when people: Just know I did not cause this
25. My favorite motto, scripture, quote that gets me through tough times is: Live for today, pray for tomorrow 
26. When someone is diagnosed I’d like to tell them: I'm sorry!  
 27. Something that has surprised me about living with an illness is: How painful it is the days following a seizure
28. The nicest thing someone did for me when I wasn’t feeling well was: Just spending time with me even when I am not the life of the party is the greatest gift.
29. I’m involved with Invisible Illness Week because: Well, it was back in July.  I just found this on a fellow blogger's sight and thought it was cool.  (see sixuntilme.com)
30. The fact that you read this list makes me feel: Happy that you may have a little more insight, and that you care!

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