Friday, September 23, 2011

Celiac Disease "invisible illness"

1. The illness I live with is: Celiac Disease
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: I have no idea
4. The biggest adjustment I’ve had to make is: eliminating gluten
5. Most people assume: it is an allergy
6. The hardest part about mornings are: missing doughnuts
7. My favorite medical TV show is: Grey's Anatomy, Mystery Diagnosis, House....I'm a medical info junky
8. A gadget I couldn’t live without is: My meter. And pump. And iPod- music makes the world a better place
9. The hardest part about nights are: wanting cookies
10. Each day I take 12 pills & 8 vitamins: plus insulin
11. Regarding alternative treatments I: try to educate myself as much as possible
12. If I had to choose between an invisible illness or visible I would choose: neither, but if I had to chose I like that I can open up when I choose about invisible illnesses. Except when I have a seizure in front of people.
13. Regarding working and career: It is not entirely due to Celiac Disease, but I am disabled
14. People would be surprised to know: Even a crumb makes me extremely ill
15. The hardest thing to accept about my new reality has been: I will never eat regular bread again
16. Something I never thought I could do with my illness that I did was: eat pizza
17. The commercials about my illness: more gluten free options are coming out, but no commercials about the disease
18. Something I really miss doing since I was diagnosed is: meatball subs
19. It was really hard to have to give up: gluten
20. A new hobby I have taken up since my diagnosis is: cooking and nutrition
21. If I could have one day of feeling normal again I would: eat spaghetti
22. My illness has taught me: How to appreciate the truly important things in life and not to be so superficial.  Food is a bigger part of our lives than we think.
23. Want to know a secret? One thing people say that gets under my skin is: "Don't they have a pill for that."
24. But I love it when people: understand
25. My favorite motto, scripture, quote that gets me through tough times is: Live for today, pray for tomorrow 
26. When someone is diagnosed I’d like to tell them: Educate yourself and life becomes so much easier.  I promise!  
 27. Something that has surprised me about living with an illness is: how painful contamination is
28. The nicest thing someone did for me when I wasn’t feeling well was: Just spending time with me even when I am not the life of the party is the greatest gift.
29. I’m involved with Invisible Illness Week because: Well, it was back in July.  I just found this on a fellow blogger's sight and thought it was cool.  (see sixuntilme.com)
30. The fact that you read this list makes me feel: Happy that you may have a little more insight, and that you care!

No comments:

Post a Comment